Jan1 4 months ago

Edited by admin 4 months ago

Of course, other nursing services may include: 

• Community Clinical Nurse Specialist team – including the Specialist Palliative Care team 
• Hospice Care in the Home 
• Hospice based palliative care nurses – ward based. 

We have lots of information about the support that we offer on our website here. If you would like to find out more or discuss what support may be available in your local area, please reach out to our Support Line. Our Support line isn’t able to refer you to these services but can explain which healthcare professionals you can talk to for a referral.  

admin 4 months ago

Edited by admin 4 months ago

Thank you for giving us a bit of background about your role Jan, what you do and other nursing services that may be available at Marie Curie. 

One of the questions we've been sent in advance is, can you explain the difference between palliative care and end of life care please? 

Imogen 4 months ago

Edited by Imogen 4 months ago

Hi Jan!

Thanks for the info you've shared so far.

My nan lives with advanced dementia and is cared for by wonderful staff in a care home. But sometimes we notice things that we're unsure about, like signs she might be in pain or distress, or that she hasn't been out of bed for a while, and it can be tricky to know how to bring it up with her carers.

Do you have any tips for having those conversations, especially if it's about potentially clinical issues (like pain)?

Thank you.

Jan1 4 months ago

Edited by admin 4 months ago

Of course, we’re often asked this question.  

Palliative Care - Palliative treatment and care might focus on managing symptoms, planning for the future, getting equipment, or having someone to share your feelings with – overall, it aims to give you a good quality of life. You might have palliative care for years, and having it doesn’t mean you’re nearing the end of life. 

End of Life Care – End of life care is support for people who are nearing the end of life. It usually starts to be offered to people thought to be in their last year of life, aiming to help them live as well and comfortably as possible in the time they have.  

For more information about palliative care, visit our webpage here . 

admin 4 months ago

Edited by admin 4 months ago

Hello Imogen, welcome to our Online Community.

Thank you for taking the time to post your question to Jan. I'm sorry to hear about your nan's diagnosis and all that you're going through as a family. I'm sure we will be able to share some tips for having these conversations.

Don't forget that we're here on the Online Community for you too 💛