Neurodegenerative diseases

GILL 4 days ago

0 replies

Edited by GILL 4 days ago

Hello everyone, I’m Gill and I have just joined so do forgive a few daft questions while I figure out how it all works!

I have a rare neurodegenerative disease called Multiple System Atrophy (MSA). It is one the “locked in” diseases, which is to say that, on the way to the inevitable end, I can expect to progressively lose mobility, speech, control of bodily functions and more.

Sorry to be blunt, but the picture is grim! I am very aware though that I do have more time than many of you and I am grateful for that, however uncomfortable those years may be.

Is there by any chance anyone else on this forum who is experiencing something similar?

Many thanks and do take care, everyone